How is Fragile X inherited?

Individuals with no sign of the condition can pass the gene mutation on to a child or grandchild. In some families Fragile X has been occurring for generations, affecting numerous family members, while in other families it may seem to appear for the first time.

What is the treatment for fragile X syndrome?

Presently, there is no cure for fragile X syndrome. However, many of the problems associated with fragile X syndrome can be improved with various treatments. Treatment consists primarily of special education, speech and language, and occupational and physical therapy. Medications are also helpful for individuals with hyperactivity, poor attention, aggression, anxiety, or depression.

How will the diagnosis help my child?

If the test for fragile X is positive for your child it means that Fragile X Syndrome is the underlying cause of the behavioral and intellectual symptoms you maybe be dealing with for your child..

It will give you a more focused direction for the child since there is a unique constellation of needs often seen in children with Fragile X Syndrome that must be considered!!
Understanding that this is a genetic condition will help the family get appropriate genetic counseling.

Do alternate remedies like homeopathy, ayurveda, astrology etc. help the child?

Yes they may help. However, it is very important to understand that these are “ alternate remedies” and cannot and should not replace therapies and other medical intervention prescribed by the doctor. The most proven help your child will get is from therapies and advice of the doctor. Therefore they can only be used as an alternate and not a substitute at all. So please remember that alternate remedies may help, whilst therapies surely help!!

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It has been an honor and privilege to assist with the development of the Fragile X Society – India.
Fragile X respects no international boundaries and it is only by working together and sharing ideas and information that we can be sure that all families, no matter where they live, receive the best care and treatment based on the best scientific evidence.

Robert M. Miller
  Former Executive Director, NFXF, USA
The Fragile X Society of India headed by Shalini Kedia has been a great source of information for us when our child was diagnosed with Fragile X. Shalini has dedicated herself to the cause of helping many parents like us by giving us direction and guiding us through the procedures of testing and contacts to doctors and giving us assurance all the way through our tough times. She has been a go getter in bringing awareness among people and giving them hope and assistance in their times of need. We are highly indebted to her for all the help she has given and continues to give us. We are indeed lucky to have her and the Fragile X Society of India without whose help we would have been lost. Thanks for single handedly starting a venture which has gone a long way in reaching out to a lot of people in need of information, resources and just for being there.

Parents of a 11 year old with fragile x