The Fragile X Society is based in Mumbai, India,

and has successfully created a network all over the country with parents and eminent doctors. The society promotes public and professional awareness. We extend help to families with affected children in terms of literature (translated versions available on request), guidance and a deep understanding of how Fragile X can impact families. We also hold seminars, workshops and conferences in Mumbai and various parts of the country.

Our founder members are Nirmal B. Kedia and Nitin S. Kedia who have always been very supportive and prove to be the spine of the organization.
Shalini N. Kedia– founder member and chairperson
Ami. R. Kothari– secretary

We have put together an excellent team as our scientific and advisory committee-

Dr Anaita Udwadia Hegde
Paediatric Neurologist-Mumbai

Dr. B.K. Thelma
Department of Genetics, University of Delhi- South campus

Dr. C. N. Purandare
Obstetrician Gynaecologist Sec. Gen. FOGSI-Mumbai

Dr. P. G. Samdani

Dr. Randi Hagerman
Medical Director of the M.I.N.D. Institute - California

Robert M. Miller
Former Executive Director, NFXF, USA

Dr. Sumantra Chattarjee
National Center for Biological Sciences - Bangalore

Dr. Vibha Krishnamurthy
Developmental Paediatrician,
the Founder and Medical Director of Ummeed –Mumbai

To know more about Fragile X visit

The “buddeez” program- has been initiated to develop friendship with a difference. Children with special...
Phone: +91 9820199092, +91 8433853448
Fax: +91 2266642151
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It has been an honor and privilege to assist with the development of the Fragile X Society – India.
Fragile X respects no international boundaries and it is only by working together and sharing ideas and information that we can be sure that all families, no matter where they live, receive the best care and treatment based on the best scientific evidence.

Robert M. Miller
  Former Executive Director, NFXF, USA
The Fragile X Society of India headed by Shalini Kedia has been a great source of information for us when our child was diagnosed with Fragile X. Shalini has dedicated herself to the cause of helping many parents like us by giving us direction and guiding us through the procedures of testing and contacts to doctors and giving us assurance all the way through our tough times. She has been a go getter in bringing awareness among people and giving them hope and assistance in their times of need. We are highly indebted to her for all the help she has given and continues to give us. We are indeed lucky to have her and the Fragile X Society of India without whose help we would have been lost. Thanks for single handedly starting a venture which has gone a long way in reaching out to a lot of people in need of information, resources and just for being there.

Parents of a 11 year old with fragile x